Saturday, March 6, 2010

It's a girl!

Yes, you heard me. :) We will welcome her into our family in the end of July (I actually think it will be early August). All the sickness I have been feeling (way worse than last pregnancy!) has finally mostly subsided. I don't think I will ever feel 100% during pregnancy, so I will just say that I am feeling good and leave it at that. The ultrasound was unremarkable in terms of problems. We will have a fetal echocardiogram at the end of the month to make sure the heart is free of defects. They did notice that the kidneys were holding the maximum volume they would allow without calling it "abnormal". So we will have another ultrasound in about 10 weeks to make sure that it is still normal. I am determined not to worry unless they tell me I should. :) And she is a little smaller than my due date would indicate. She is about 6 days behind schedule, but they do not worry about that discrepancy until it is 10 or more days off. So so far, so good. Anyway, we are SUPER excited! We have a room that has always been our future daughter's room (it was painted two-toned pink by the previous owner) and we are excited to have a use for the room. S is excited for our daughter to take a leadership role in the family with the rest of the future children. And I am excited to shop! :)

As a side note, we told our ultrasonographer about Boo's birth defect and his trouble that he had in the womb (part of my preeclampsia). She was very surprised that they at the University did not catch such an obvious birth defect as tetralogy of Fallot. She and the perinatologist went back and looked at his ultrasound records and discovered two things:
1. Boo's defect, even knowing what it was and looking for it specifically, was still undetectable on the ultrasound pictures.
2. SHE herself performed the ultrasound! I am pretty sure she felt terrible about that, and we probably wrecked her day by letting her know of all Boo's problems. But we were very clear and sincere - really and truly we do not assign blame for all the problems poor little Boo has had. It was actually a bit comforting to know, after wondering for quite some time, that Boo's defect was really not discernable and things could not have turned out differently.

Tuesday, February 9, 2010

What Boo Can Do

Boo has been really funny lately. He is, of course, still quite behind on his development, but that does not keep him from frequently surprising us with his newfound skills! Here is a list, which is not meant to be comprehensive, of things that Boo can do:

1. Find his nose, his ears, Mama's nose, and Dada's nose, and his mouth. I had been trying to teach him this skill for several months, all to no avail. Or so I thought. I believe, although I cannot prove it, that he learned this skill very quickly and simply did not know how to show that he knew it. You see, he will not point to his nose or ears or anything else when asked. He needs to hold on to your finger and take you to it! Funny kid.2. Army crawl. This is not his preferred method to get from here to there (rolling and back scooting have to take first place there!), but he will do it, both when encouraged and when on his own. (Notice the lack of hair on the back of his head, due to his preference of back scooting!).3. Stay on all fours for 30ish seconds. He hates this, but it is a necessary evil. And it is exciting that we don't have to hold him up anymore because his arms have gotten stronger.

4. Spit. Raspberries, anyone?

5. Clap in time to "Bingo", as well as several other songs (some of them made up!). And I mean it...he knows exactly when to clap!

6. Play ball with Dada. Those two have all kinds of fun rolling the ball back and forth. He truly is "so glad when Daddy comes home".7. Put things in a container (this has been a LONG time coming!). I even found my cell phone in his train the other day. This is all thanks to the $10 tree thing I got as an afterthought for Boo for Christmas.8. Help brush his teeth.

9. Say "N-Teh". Strange, but true. He says it and he will also imitate it when I say it. This is the first thing he has ever imitated.

10. Turn off the lights. We do this every time we leave his room.

11. Give things to Mama when asked.

12. Turn pages in books at the right time (assuming he likes the particular page...). He does have his favorite pages, like the bear page in "We're Going on a Bear Hunt" and the horse page in "Who Says Moo?". (This to say nothing of his like for horses since he hates to go visit the horses at the end of our street. He cries big tears every time!).

13. Get 12+ teeth all at once and hardly act any different!! Who ever met a baby who cares so little about teething?!

14. Recognize himself in the mirror by jerking his arm around and making sure his reflection does the same.

15. "Give" Mama kisses (leans in for a kiss when asked). This is the best part. :)

16. Suck ALL his fingers (sometimes even all at the same time!). He used to suck only his right thumb, but he has chosen to branch out. He has even sucked on paper a few times.

17. Be off his oxygen for THREE WHOLE DAYS this past weekend!!! This is a first by far, since he has never been off of oxygen ever for even a short amount of time. During this time, he learned how to harvest his own boogies, since he usually has to share his nostrils with his nasal cannula. He caught his first boogie with his thumb! He is back on again now, but we got a taste of what it is to have a cordless baby, and we look very much forward to it again in the future!Sorry for the weird pictures in this post. They are not the cutest, but they do illustrate my points. And I clearly need to be taking more pictures! Every now and again, as the mother of a developmentally delayed child, I dwell on the things that Boo cannot do yet, sadly. Fortunately, this is not usually the case. It is fun to watch Boo grow up in an unconventional way, doing all the things, expected and unexpected, that he CAN do. And he can do a LOT! We love you, Boo!!!

Friday, December 25, 2009

Thursday, December 24, 2009

Family Christmas Card, written by S

I would like to honor BYU in their bowl win. They have had a good run the last four years although I found myself a bit disappointed in some of the games.They beat Utah and besides putting everyone at work in a bad mood that was great.
I would also like to wish everyone a Merry Christmas. We didn't get Christmas cards out like we did last year but just so everyone knows we are doing good. I finished my last class to get my masters in electrical engineering and now I only need to pass a comprehensive masters exam which is set for the last week in February. It is strange to admit that just six months ago I was fantasizing what it would be like to be off of academic probation and worry about being expelled at any moment and now I will be graduating at the end of spring semester provided that I pass this exam.
From a facilities management perspective, we finished painting the front room and the kitchen from the original light blue to a brown, yellow, red and buff. The front entrance is a 16 ft high vaulted ceiling which required a lot of innovation on my part.
A is staying busy with Boo, He is now rolling which is a big development for him. He is 19 months old and he is always happy and smiling. He does laugh at anything Ashley does and very few things that I do. One thing funny about him is when we change his shirt, his hands are hidden from view for an interval of time and once either hand re-appears he always performs a full inspection of both hands checking his palm and back of both hands very carefully presumably to make sure all is still well with them. Also A plays a game where she pretends to be "getting Boo" and he curls up in a ball as a way to hide or protect himself from being "gotten." After watching this for a while, I determined that someone needed to stand up for Boo so I picked him up and started saying "Boo's going to get Mom" and A pretended to hide from Boo and he laughed very hard which was fun to see. It must have been nice to have the tables turned after so long. One other item about him is that if he is watching A unload the dishwasher he will laugh each time a cup is successfully placed in the cupboard but not when bowls or plates are placed. (Hence, the video). We hope to be able to learn why some day.
He is still on oxygen and is now on a constant feeding drip for 20 hrs a day. This has slowed A down a lot such that she must be basically only a few feet away from him at all times so that he doesn't roll too many times and disconnect his feeding tubes. We hope to be done with this constant drip after 4-6 months. We are on a basic quarantine again this winter so Boo doesn't leave the house except for doctor's apppointments. We do look forward to being able to entertain more friends and family after the season.
We did have a christmas miracle where we had an ultrasound performed the first week of December as a pre-surgery effort of Boo's heart in preparation for a pulmonary heart valve replacement surgery that we expected in Jan or Feb. At the appointment our cardiologist and A and I were very suprised to learn that Boo's heart was unchanged from September and that his surgery could be postponed. The cardiologist believes that Boo's lung disease is healing faster then his heart is getting worse to leave it unchanged. This is great news because it buys him more time to grow before this inevitable third open heart surgery. We attribute this as an answer to prayer.

Merry Christmas to you all, and enjoy the video in a post to be posted as soon as we can get it to work, taken just a few days ago.

Tuesday, October 13, 2009

Boo's Recent Mischief and More

To start off, here are some semi-recent photos of Boo doing his thing. From above left: Boo and one of his favorite toys (the 60cc syringe) in his new stroller; Boo and Dad - can you tell what is missing? (p.s. this picture was taken as we were switching out nasal cannulas, he still does need oxygen 24/7); Boo being happily impatient for Mama to get his breakfast (ie. to put his tray over him so he could play with his toys. This little guy has no concept of hunger!).

Now for some contrasting photos...

1. Boo LOVES frosting! Thanks for buying Walmart cupcakes just for me to play in, Mama!2. That's ENOUGH Mama! No more pictures. In fact, hand over that camera!2. Wild child. Who gave you permission to play Peek-A-Boo in the middle of the night?!1. OK, Dada, give me your glasses and you can play with your Blackberry in peace.2. OK, Dada, now hand over the Blackberry.1. Nursing?????2. Don't be fooled! :)1. Boo worked himself into a corner and then cried because he couldn't get out. (He only knows how to move forward and side to side.)2. After I so graciously removed him from his self-imposed time-out, he proceeded to scooch his little bum to him therapy board and erase it! Someone didn't want to do his assignments!

Monday, September 21, 2009

Happy Anniversary!

It's been two years! And quite frankly, we both agree that it seems like it has actually been soooo much longer. This is not to say anything about the quality of the past two years, but it is to say a TON about the QUANTITY of happenings in the past two years. Our wedding day was so much fun. I love looking back at the pictures. We are obviously so happy to be wed and so in love.

I am happy to report that we are still happy and still in love, although much has changed. We used to lament that we did not marry during the "poor college years," because we imagined those years to be a wonderful time to "live on love" alone and grow close to each other. But, our "gravy days" did not last long. We have been welcomed in to the world of budgets and bills and mortgages and not being like Thomas Jefferson (who, according to John Adams, was never known to have denied himself anything). We love it. Hopefully someday we will be "loaded" (a prerequisite to our purchasing any number of things, according to S), but right now we are content (and when we are not, we remind ourselves that we are!). :)

It doesn't get much better than being married to such a thoughtful, caring, sympathetic, handsome, and humble husband as mine. I love him SOOO much and I am so glad to see him fill his fatherly role in our home. Boo couldn't ask for a better "da-da" (Boo's words!) either. Yay for our marriage! Yay for the temple! Yay for love! Yay for eternal families!

Happy Anniversary, Sweetheart!

Wednesday, August 26, 2009

This is the place...

Where Boo lives. (It has been rearranged/significantly improved, especially considering that we have no changing table. Where Boo sleeps. He has taken to sleeping with some sort of cloth (no favorite blankie at this point) and sucking it with his thumb. This position is taken in his sleep, as well as before his sleep, so it is a sure indication that he is tired. He also manages to scoot himself up to the top of his bed during the night, thus becoming my "Scooty Boo-ty"!Where our rose bushes (aka. eye sores) used to be. They are gone! Yay! (P.S. Thanks S!) :)Where our new couches reside. (Ignore the mess, please). They were used, actually. We are so thrilled with our little purchase. They were a great deal, so there is no buyer's remorse here! Pretty much it is our dream couch. 2 recliners, a hide-a-bed, a little storage place for all of S's pocket items, and it's in good condition. I think we would have picked this color too, although considering the color we are painting our house, it may not have been my number one choice. We will just have to see how it looks. Then if anything goes, it will be the paint because we love our couches!
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