Sunday, March 21, 2010

Bingo

I have been meaning to record this for a long time. This kid has rhythm! :) (He sometimes gets excited and claps more or forgets a clap, but he really knows how to clap to this song!)

Thursday, March 18, 2010

DONE!!!

Can I just tell you about my amazing husband? He has been working on his Master's degree for the past ~5 years. This has included all of our dating and married life and more. On more than one occasion, he has been threatened with being kicked out of school due to having received a "C" grade (barely passing for grad students) in a class in 2006. Because of this "academic probation", he has had to work extra hard to pull his grades up in his classes, all the while fighting the removal with appeal after appeal and working full-time (not to mention all that has gone on with Boo and I over the past two years!).

He finally got two "A" grades and was able to get off academic probation for good. He finished his coursework in December, after which he had to take a comprehensive Master's exam - over all his classes. 6 years worth of studies!! Well, he worked super hard and PASSED the exam on the first go (one only really gets one try, but one could, in theory, appeal to take it again) on Feb. 26, 2010!

Now we get to take our long awaited trip to Tempe for his graduation. We are going to stock up on ASU alum paraphernalia. :) This is like a dream come true - and a hardly likely outcome, considering all that was going on with his schooling last year at this time. Having him free of study demands has afforded us liberties we have never known. Like being able to go places all day on Saturdays or Fridays off. Or having Dada help out with Boo's bath - something I always felt guilty asking for before, since he really needed to study. Or having him help with much of anything for that matter (even though he always found time to help out with things I REALLY needed). Now we can finish painting our house and get tile our kitchen and dining floors, and take care of our lawn (which I think is suffering from pink snow mold...), and do everything else we always talk about but never do for time's sake.

And did I mention we get to go to Arizona? Yeah, I know I did. :) I am SO looking forward to the warm or hot weather, be what it may. And not worrying about Boo getting sick (assuming there is not much sickness going around in mid-May...). And a LONG road trip (Boo cannot fly very easily with oxygen) - seriously, I LOVE road trips. And spending time with family that we don't see very often/that I have never seen at all!

If S were to read this post as I am writing it, he would remind me to "take joy in the journey", as I am often reminded around here. Admittedly, I do get caught up in looking forward to the future quite a lot. But, I must also admit that life around here is going well, we are happy, spring is coming (oops, there goes the journey again...), Boo is learning and having fun and so am I. Lest anyone remain in doubt, we are not waiting until this much-awaited graduation ceremony to be happy. :)

Tuesday, March 9, 2010

Our Little Teapot

This video comes as a result of our physical therapist suggesting to me that I push Boo over on occasion (on a soft surface of course!) to get him used to falling and that it is OK to fall. We set the routine to music (like I do with every other routine) and then we practiced all day. By the next day, Boo was tipping HIMSELF over at the appropriate time! It is amazing to me how fast he catches on to things, especially when they involve music. This is one of our fun diaper routines (except at the end when he had too much time on camera...).

Saturday, March 6, 2010

It's a girl!

Yes, you heard me. :) We will welcome her into our family in the end of July (I actually think it will be early August). All the sickness I have been feeling (way worse than last pregnancy!) has finally mostly subsided. I don't think I will ever feel 100% during pregnancy, so I will just say that I am feeling good and leave it at that. The ultrasound was unremarkable in terms of problems. We will have a fetal echocardiogram at the end of the month to make sure the heart is free of defects. They did notice that the kidneys were holding the maximum volume they would allow without calling it "abnormal". So we will have another ultrasound in about 10 weeks to make sure that it is still normal. I am determined not to worry unless they tell me I should. :) And she is a little smaller than my due date would indicate. She is about 6 days behind schedule, but they do not worry about that discrepancy until it is 10 or more days off. So so far, so good. Anyway, we are SUPER excited! We have a room that has always been our future daughter's room (it was painted two-toned pink by the previous owner) and we are excited to have a use for the room. S is excited for our daughter to take a leadership role in the family with the rest of the future children. And I am excited to shop! :)

As a side note, we told our ultrasonographer about Boo's birth defect and his trouble that he had in the womb (part of my preeclampsia). She was very surprised that they at the University did not catch such an obvious birth defect as tetralogy of Fallot. She and the perinatologist went back and looked at his ultrasound records and discovered two things:
1. Boo's defect, even knowing what it was and looking for it specifically, was still undetectable on the ultrasound pictures.
2. SHE herself performed the ultrasound! I am pretty sure she felt terrible about that, and we probably wrecked her day by letting her know of all Boo's problems. But we were very clear and sincere - really and truly we do not assign blame for all the problems poor little Boo has had. It was actually a bit comforting to know, after wondering for quite some time, that Boo's defect was really not discernable and things could not have turned out differently.

Tuesday, February 9, 2010

What Boo Can Do

Boo has been really funny lately. He is, of course, still quite behind on his development, but that does not keep him from frequently surprising us with his newfound skills! Here is a list, which is not meant to be comprehensive, of things that Boo can do:

1. Find his nose, his ears, Mama's nose, and Dada's nose, and his mouth. I had been trying to teach him this skill for several months, all to no avail. Or so I thought. I believe, although I cannot prove it, that he learned this skill very quickly and simply did not know how to show that he knew it. You see, he will not point to his nose or ears or anything else when asked. He needs to hold on to your finger and take you to it! Funny kid.2. Army crawl. This is not his preferred method to get from here to there (rolling and back scooting have to take first place there!), but he will do it, both when encouraged and when on his own. (Notice the lack of hair on the back of his head, due to his preference of back scooting!).3. Stay on all fours for 30ish seconds. He hates this, but it is a necessary evil. And it is exciting that we don't have to hold him up anymore because his arms have gotten stronger.

4. Spit. Raspberries, anyone?

5. Clap in time to "Bingo", as well as several other songs (some of them made up!). And I mean it...he knows exactly when to clap!

6. Play ball with Dada. Those two have all kinds of fun rolling the ball back and forth. He truly is "so glad when Daddy comes home".7. Put things in a container (this has been a LONG time coming!). I even found my cell phone in his train the other day. This is all thanks to the $10 tree thing I got as an afterthought for Boo for Christmas.8. Help brush his teeth.

9. Say "N-Teh". Strange, but true. He says it and he will also imitate it when I say it. This is the first thing he has ever imitated.

10. Turn off the lights. We do this every time we leave his room.

11. Give things to Mama when asked.

12. Turn pages in books at the right time (assuming he likes the particular page...). He does have his favorite pages, like the bear page in "We're Going on a Bear Hunt" and the horse page in "Who Says Moo?". (This to say nothing of his like for horses since he hates to go visit the horses at the end of our street. He cries big tears every time!).

13. Get 12+ teeth all at once and hardly act any different!! Who ever met a baby who cares so little about teething?!

14. Recognize himself in the mirror by jerking his arm around and making sure his reflection does the same.

15. "Give" Mama kisses (leans in for a kiss when asked). This is the best part. :)

16. Suck ALL his fingers (sometimes even all at the same time!). He used to suck only his right thumb, but he has chosen to branch out. He has even sucked on paper a few times.

17. Be off his oxygen for THREE WHOLE DAYS this past weekend!!! This is a first by far, since he has never been off of oxygen ever for even a short amount of time. During this time, he learned how to harvest his own boogies, since he usually has to share his nostrils with his nasal cannula. He caught his first boogie with his thumb! He is back on again now, but we got a taste of what it is to have a cordless baby, and we look very much forward to it again in the future!Sorry for the weird pictures in this post. They are not the cutest, but they do illustrate my points. And I clearly need to be taking more pictures! Every now and again, as the mother of a developmentally delayed child, I dwell on the things that Boo cannot do yet, sadly. Fortunately, this is not usually the case. It is fun to watch Boo grow up in an unconventional way, doing all the things, expected and unexpected, that he CAN do. And he can do a LOT! We love you, Boo!!!

Friday, December 25, 2009

Thursday, December 24, 2009

Family Christmas Card, written by S

I would like to honor BYU in their bowl win. They have had a good run the last four years although I found myself a bit disappointed in some of the games.They beat Utah and besides putting everyone at work in a bad mood that was great.
I would also like to wish everyone a Merry Christmas. We didn't get Christmas cards out like we did last year but just so everyone knows we are doing good. I finished my last class to get my masters in electrical engineering and now I only need to pass a comprehensive masters exam which is set for the last week in February. It is strange to admit that just six months ago I was fantasizing what it would be like to be off of academic probation and worry about being expelled at any moment and now I will be graduating at the end of spring semester provided that I pass this exam.
From a facilities management perspective, we finished painting the front room and the kitchen from the original light blue to a brown, yellow, red and buff. The front entrance is a 16 ft high vaulted ceiling which required a lot of innovation on my part.
A is staying busy with Boo, He is now rolling which is a big development for him. He is 19 months old and he is always happy and smiling. He does laugh at anything Ashley does and very few things that I do. One thing funny about him is when we change his shirt, his hands are hidden from view for an interval of time and once either hand re-appears he always performs a full inspection of both hands checking his palm and back of both hands very carefully presumably to make sure all is still well with them. Also A plays a game where she pretends to be "getting Boo" and he curls up in a ball as a way to hide or protect himself from being "gotten." After watching this for a while, I determined that someone needed to stand up for Boo so I picked him up and started saying "Boo's going to get Mom" and A pretended to hide from Boo and he laughed very hard which was fun to see. It must have been nice to have the tables turned after so long. One other item about him is that if he is watching A unload the dishwasher he will laugh each time a cup is successfully placed in the cupboard but not when bowls or plates are placed. (Hence, the video). We hope to be able to learn why some day.
He is still on oxygen and is now on a constant feeding drip for 20 hrs a day. This has slowed A down a lot such that she must be basically only a few feet away from him at all times so that he doesn't roll too many times and disconnect his feeding tubes. We hope to be done with this constant drip after 4-6 months. We are on a basic quarantine again this winter so Boo doesn't leave the house except for doctor's apppointments. We do look forward to being able to entertain more friends and family after the season.
We did have a christmas miracle where we had an ultrasound performed the first week of December as a pre-surgery effort of Boo's heart in preparation for a pulmonary heart valve replacement surgery that we expected in Jan or Feb. At the appointment our cardiologist and A and I were very suprised to learn that Boo's heart was unchanged from September and that his surgery could be postponed. The cardiologist believes that Boo's lung disease is healing faster then his heart is getting worse to leave it unchanged. This is great news because it buys him more time to grow before this inevitable third open heart surgery. We attribute this as an answer to prayer.

Merry Christmas to you all, and enjoy the video in a post to be posted as soon as we can get it to work, taken just a few days ago.